Ashton took the bus today- typical hospital app with his geneticist. BUT he hasn't been for 4 years so this was a biggie. Went over major issues my little man has been facing.
Demonstration: Ashton: "pant pant pant, whine whine, cry" Mom: "Ashton, what's wrong?" A: "pant pant pant pant" M: "Ash, calm down... you're okay." A: "uncontrollably crying" M: -walking away, saddened by a feeling of not being able to help-
This happens 10-50 times/day. It's heartbreaking. He wants nothing and everything all.at.once.
Diagnosis: AMAZING! finally- we hope to have figured it out. Anxiety disorder. The geneticist was shocked we have been living like this, and -GET THIS- apologized.SO a referral has been sent to the psych and a medication will be in his near future.She said since his trigger to calm down is "pop" she believes his brain is asking for a stimulant to help it relax, thus craving pop. She encouraged the pop and said until the meds kick in, it's his vice and his brain may need it.
Issue #2: spots on his skin
Diagnosis: NORMAL!
Issue #3: Behavior issues, communication struggles among many many other things.
Diagnosis: She believes he has... ready for this one?.... AUTISM! she sent a referral for us and just wants a "confirmation" of what she already observed. WHICH means, LOTS of funding opens up- LOTS. This IS good news.
Otherwise Ashy is doing pretty well, she gave us some pros and cons of the growth hormone, which we decided a while back against. But she would like us to read some more literature about it. She said one major con would be that if he doesn't ever walk, we may end up with a very large grown up to carry around -LOL-. a big pro would be his muscle mass will improve since he has NONE and maybe it will help him push himself in his wheelchair, or crawl better?
Ashton is tired, sipping some pop on the couch and watching Blues Clues. Thanks for reading!
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